MarlaJan DeFusco

General Info

Registered Nurse (BSN, RN), Certified Pediatric Nurse, Patient Advocate & Speaker

Hi I'm MarlaJan (or Marla, MJ)! I'm a thirty-something pediatric cardiac ICU nurse (currently on disability), patient advocate, and I blog over at www.luckfupus.com, a lupus awareness blog, which won the 2014 WEGO Health Hilarious Health Activist Award. I was officially diagnosed with Systemic Lupus Erythematosus (lupus or SLE) at the age of 26. Lupus has exponentially changed every aspect of my life, including forcing me to leave a career I loved. As a lupus sufferer, I hope to bring awareness to this little-known, devastating, incurable disease, and while I'll always keep it real, be prepared for heavy doses of humor and sarcasm! I'm also a congenital heart defect survivor (tetralogy of Fallot), and a breast cancer previvor (mastectomy 12/1/14), so there is a great deal of information I can bring to the table. I love connecting with other's who live with lupus, and look forward to leading this community.

Contact Info

marlajan81

Philadelphia

Registered Nurse (BSN, RN), Certified Pediatric Nurse, Patient Advocate & Speaker

Hi I'm MarlaJan (or Marla, MJ)! I'm a thirty-something pediatric cardiac ICU nurse (currently on disability), patient advocate, and I blog over at www.luckfupus.com, a lupus awareness blog, which won the 2014 WEGO Health Hilarious Health Activist Award. I was officially diagnosed with Systemic Lupus Erythematosus (lupus or SLE) at the age of 26. Lupus has exponentially changed every aspect of my life, including forcing me to leave a career I loved. As a lupus sufferer, I hope to bring awareness to this little-known, devastating, incurable disease, and while I'll always keep it real, be prepared for heavy doses of humor and sarcasm! I'm also a congenital heart defect survivor (tetralogy of Fallot), and a breast cancer previvor (mastectomy 12/1/14), so there is a great deal of information I can bring to the table. I love connecting with other's who live with lupus, and look forward to leading this community.

marlajan81

Philadelphia

MarlaJan DeFusco's Timeline

Dr. Stephen Soloway's Lecture on Lupus

Dr. Stephen Soloway's Lecture on Lupus

About this video:

Dr. Stephen Soloway's Lecture on Lupus

Published in Systemic Lupus Erythematosus
Published on: January 28, 2015 at 21:44:23
Comments 2
  • Sean Moloney 31 January 2015, 13:21
    Comprehensive and so clearly delivered for us all to learn from. Thank you, MarlaJan and Dr. S. Soloway! We should all invite others to watch, join, and contribute their story and insights so we can all learn together.
  • MarlaJan DeFusco 2 February 2015, 7:52
    Thanks Sean! Dr Soloway is my rheumatologist and gives lectures quite frequently to medical students at area schools (I'm in the Philadelphia area).
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